We finally made it!!! 💕💕 She is laughing and smiling and she loves her bed!!! She loves her room and it was absolutely the best thing in the world to hear her laugh!!! She has radiation bright and early in the morning and Friday morning. We have lots of meds to give and alarms to set. Please keep praying for our Perfect Princess Gwen our Sweetest Little Bean! 💕💕💕

Gwen is so tired of being in the hospital. She had some Starbucks today and enjoyed some sunshine. ☀️  Every time we get outside they call her up for something else. The second time we got outside she just wanted to sleep and if we tried to bring her inside she screamed she just wanted to sleep outside. She is tired of being here where people are constantly messing with her looking at her and walking her up. She isn’t sleeping she is scared and traumatized. She felt safe and happier outside. We still had to come back in so another dr could check her. We’re doing everything we can to try to get her home. She went for her fitting for her radiation mask today and starts radiation Thursday. She’s just tired. Her parents are tired no one is getting any sleep. Please keep praying they will let her go home asap! Please keep praying for our Perfect Princess Gwen our Sweetest Little Bean! We need a miracle! 💕💕💕

Not much change today. We are desperately wanting Gwen out of the hospital; she is miserable. She goes tomorrow for her radiation screening. She will have the MRI done and get fitted for her radiation mask. They will transport her by ambulance and then back to the hospital.  Please keep praying for our Perfect Princess Gwen our sweetest Little Bean! 💕💕

Gwen is eating her chips and we went for a walk today in her chair. She is still doing good. We still don’t know anything about radiation or about when she will get to go home yet. We are hoping soon though. She is still testing positive for staph. During her brain surgery it tested negative so it’s not in her brain. Please keep praying for our Perfect Princess Gwen our Little Bean!! 💕💕

Gwen got moved to a regular room today!!! We are so excited!!! She has been eating Pizza today! She’s happy to have her hands to be able to hold her tablet again. Her moods change fast so we take the hugs while we can get them before she shoots us a dirty look. 😂 Today was a good day! 💕 I haven’t got to spend a lot of time with her today; I have been working on her room. I’m super thankful for Mariusz, Justin, and Judsen for helping put her bed together and her dad’s bed together. I hope she loves it. 💕 Please keep praying for our Perfect Princess Gwen our Little Bean! 💕💕

Gwen is out of surgery and she doesn’t have a breathing tube anymore. They said her surgery went perfectly! We are so happy to hear her little super hoarse voice. She has a lot of tears right now. She quickly reminded us she wants to go home. 😭 We are still in ICU and hoping that they move us to a normal floor this weekend. Thank you to everyone who has been praying! Thank you to everyone who has donated to Gwen and who has helped with her Amazon wish list. We are so thankful for all of you! Please keep praying for our perfect Princess Gwen our Little Bean! 💕

We finally have some wins!!! Gwen’s having surgery tomorrow for the VT Shunt. It will be sometime tomorrow afternoon. I will update when I know more. They say after surgery we get to wake her up and take the tube out and hopefully within 4 hours she can start eating. She will be so happy to eat! Her cultures came back that the staph is responsive to Vancomycin which they have been giving her since the suspected she had an infection. We are taking this all as a blessing because this gets us one step closer to having her back with us and getting her to oncology and radiology.  Please keep praying for our perfect Princess Gwen our Little Bean!! 💕

Gwen’s still the same. Her culture hasn’t come back today which is a good sign. That means it’s either negative or the strain is weaker because it’s taking longer to grow. They didn’t clamp her drain today; they have just left her sedated today. So we are just waiting and waiting and waiting…… please keep praying for our perfect Princess Gwen our Little Bean! 💕

They tried to clamp Gwen’s drain last night but her pressure went up in her head. They have her drain open again. They have tried to turn her vent down so she has to breathe more on her own. Her cultures are still showing staph. The Neuro doctor said he will try again tomorrow to turn the drain off and test the pressures in her head. If they still are too high and the clot is still blocking the flow for the first surgery they will need to put a VT shunt in but they can’t do that until after the cultures are clear. They put a boot on her foot to help with mobility of her ankles while she isn’t able to move. While she is dealing with all of this we still aren’t able to address the actual reason she is in here. The cancerous tumor in her brain stem. Please pray for her. She deserves a break. She deserves some good news. She deserves to get out of this bed and play. We love our perfect Princess Gwen our Little Bean! 💕

Gwen had a CT today. It shows the blood clot is still there. Her culture showed staph but they think it could be cross contamination. They are treating her for staph. She has had a fever for a few days. They are weaning her off of oxygen and will turn her drain off soon. They want to see if the pressure of the fluids in her head will help break the clot loose so the fluids can drain and if her brain will absorb the fluids. Her doctor has been doing this for 30 years and never seen a clot form like this. They will continue to monitor the pressure and can turn the drain back on if it gets too high. They will leave her sedated and intubated at least until Friday. They have to treat whatever is causing the fever before they can address a VT shunt if she does end up needing one. So her radiation is up in the air because they can’t do anything until her neuro is taken care of. We need prayers. Please we just want to get our girl home and started on radiation. We want to be able to play with her. Please keep praying for our perfect Princess Gwen our Little Bean! 💕