2/2/24

My update on Gwen tonight is that we just need prayers. I will update you when we know more. Please just pray. 💕

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Gwen update: I was really unaware of how many worst days of your life you can really have in such a short period of time…. Gwen had another set back yesterday. At 4:00am in the morning on Friday we noticed her left eye was closed more than it had been. Around 6:00 am we noticed even more swelling. We had her up and outside wheeling her around so she was upright trying to let gravity help. It didn’t help. The swelling continued. Yesterday afternoon several doctors consulted and one neuro doctor asked if her hair was wet and we hadn’t thought about it but she had had a shower the night before. Later when I picked her up I checked and her hair was wet. It was wet where she had staples from the biopsy CF fluid was leaking out. They did a CT scan and found there was a blood clot from the original surgery where they went in to create a drain for the fluid and the fluid started building up and leaking out the easiest way to get out which was where her staples were form her second surgery. The doctors made the decision to send her back to ICU intubate her and put a drain in her head. They also put stitches where the staples were so there shouldn’t be anymore leakage there. They will keep her intubated and reevaluate her today but may keep her intubated for a couple of days. They may also still need to add a shunt to drain the fluid. It took a while to get her temperature down and her heart rate up because of all the medications she is on after the surgery last night but she is doing good today. I’m sorry it was just all too much yesterday and overwhelming. She just doesn’t deserve any of this and wants to go home so badly.  I will update you all later of any changes. Please pray she doesn’t have anymore setbacks. We love our perfect Princess Gwen our Little Bean! 💕